Thank you for your interest in the Friedreich’s Ataxia Global Patient Registry.

Currently, the FAGPR is not enrolling new participants.

While the FAGPR is ending, we continue to develop ways to serve the FA global community. We encourage you to stay connected with us through the partner organizations websites – www.curefa.org and www.pulseinfoframe.com - and social media channels for updates on future initiatives.

We remain committed to advancing FA research and look forward to your continued engagement in these important research efforts.

Best regards,
FARA, Pulse Infoframe, and the FAGPR governance board

Please direct any questions to the registry coordinators at FAGPR@curefa.org